Long Term Goals Of Mitodisease

While a commercial organisation, we intend to work in the "spirit" of a charitable organisation, and as such layout our long term aims herein. These goals are clearly for the long term. For the short and medium term goals, please see our appeals page.

Charity

To establish a registered charity to benefit from the commerical activities of MitoDisease and acheive the targets below.

Support

No scientist, medical researcher or student working in the field of mitochondrial diseases shall find themselves lacking a laboratory, equipment, required finances, or access to any documentation they may require.

Initially, we shall acheive this goal by issuing grants to individuals or insitutions who are unable to find the funds elsewhere and gradually, over time, introduce our own laboratories and eventually, research facility.

Laboratories

We shall supply fully equipped laboratories available free of charge, where possible, to scientists, students and medical researchers working on mitochondrial diseases. Ideally these laboratories will be scalable with sufficient infrastructure to later be extended into a fully blown research facility, however, if this is not feasible, getting the labs at all takes preference. Each lab should be staffed by at least one full time lab technician.

Facility

We propose a £25,000,000 state of the art research facility devoted to developing experimental mitochondria disease treatments. Obviously, this is a very long term goal.

Our facility would be home to an inhouse Mitochondrial Therepeutics Research And Development Team, and would be responsible for developing gene therapies, antioxidant treatments, phage integrase vector development, as well as conducting clinical trials, and making available our equipment for external scientists in related fields of research.

Construction of such a facility would have many benefits. Primarily, it would allow the employment of full time researchers and so increase the speed of therapeutic development. Also, it would reduce overheads as facilities, equipement and resources would no longer need to be rented from third parties on a case by case basis.

Initial plans would be to employ 7-10 full time researchers, and spend 6-8 million of the allocated budget on new equipment.

Care

No child shall be without the best available medical or hospice care due to financial constraints. Due to stupid laws, we cannot pay for the care of individual children. Instead, we shall offer grants to hospitals, hospices and care insitutions on the condition that they use the grant money to then provide medical care on a means tested basis to those who need it most.

Hospice

Further to the above, we shall provide hospice services throughout the world for end of life care for mitochondrial disease sufferers.

Provision For Growth and End Of Charity

Should the charity dissolve for any reason, including, but not limited to, the ultimate cure of mitochondrial diseases, or trustee disbandment, the assets shall be passed to The RAT Foundation. Additionally, as our research institute and laboratories become live, we reserve the right to to departmentalise the research and also allow other biomedical projects to take place with equal, but not greater, priority.